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Resources and FAQs for Patients

FAQs

I’ve been diagnosed with hepatitis B. What happens now? 

Hepatitis B can lead to serious conditions such as cirrhosis and liver cancer. You’ll need regular monitoring so any liver damage can be picked up early, before it becomes permanent. That’s why we encourage you to register with us for support and monitoring if you have the virus. We can answer your questions and complete an assessment so we can give you the best possible care. We’ll send you blood test forms every six months so you can have your liver condition checked. We’ll also remind you when these tests are due and you can contact us free anytime if you need further support. 

Am I at risk? 

You’re at risk of contracting hepatitis B if you: 

  • Are a New Zealander of Maori, Pacific or Asian ethnicity, unless you were fully vaccinated as an infant. 
    Were born in an area with high rates of hepatitis B, including Asia, the Pacific Islands, Africa, the Middle East, southern Europe or the northern or eastern parts of New Zealand’s North Island. 

  • Live with someone who has hepatitis B 

  • Have a mother or close family member with hepatitis B  

  • Have had unprotected sexual contact with someone with the virus 

  • Have received a tattoo or had a medical procedure (i.e dental, injection, body piercing etc) with unsterile equipment. 

How can I protect myself? 

You should get tested if you fit into one or more of the above groups. It’s important to do a blood test to see if you have immunity, especially if you’re unsure of your status and have a spouse or partner with hepatitis B. Effective hepatitis B vaccines are available free to everyone under 18 and for some contacts of a person with the virus. 

Is there a cost for this? 

All our services are free for New Zealand residents. This includes blood tests, fibroscans, consultations and support. We are contracted by NZ’s Ministry of Health to provide the long-term monitoring programme. That’s where our funding comes from. 

Do I need to take medication?

There is no cure for hepatitis B, but the virus can be managed with medication. Not everyone with hepatitis B needs medication and the decision to start treatment depends on age, your test results and other factors. Our team will analyse your blood test results and refer you for further testing or to start treatment if needed.  

What medication could I be given? 

Entecavir and Tenofovir are the first-line treatment medications for chronic hepatitis B. They reduce the amount of virus in the body. Both medications are successful in most patients who take them as prescribed. Tablets are taken once a day. These medications are fully subsidised for NZ residents, so the cost is $5 for a three-month supply. Both medications have been used around the world for more than 10 years and have a high safety rating. 

I’ve given consent for you to keep my contact details on file. Does this mean I’ll get spam mail? 


No. We only hold your contact details for healthcare purposes and won’t contact you for any other reason. Your information is secure and won’t be shared with anyone without your permission. 

If my blood test shows there’s a problem what can I do? 

Blood tests can save your life by picking up possible liver health problems early. Our clinical team will assess your test results and refer you to further testing or to a secondary care specialist if required. Our nurses will keep in touch with you and your GP to help manage your treatment. Please call our free helpline anytime if you’re concerned about test results or would like them explained to you. 

Can I have a child if I have hepatitis B? 

Yes. However it’s important to keep having your regular hepatitis B blood tests during pregnancy. We recommend telling your doctor or midwife about your hepatitis B status, so your baby can be protected from the virus as soon as it's born. Please contact us for further information or to talk to a community nurse. Find out more about hepatitis B in pregnancy.

Resources

We have resources for patients that can be found here. 

If you need someone other than the Foundation to speak to - where to get help:

If it is an emergency and you feel like you or someone else is at risk, call 111.

Healthline: 0800 611 116
Need to Talk? Free call or text 1737 any time to speak to a trained counsellor, for any reason.
Asian Family Services: 0800 862 342 Monday to Friday 9am to 8pm or text 832 Monday to Friday 9am - 5pm. Languages spoken: Mandarin, Cantonese, Korean, Vietnamese, Thai, Japanese, Hindi, Gujarati, Marathi and English.
Lifeline: 0800 543 354 or text HELP to 4357
Suicide Crisis Helpline: 0508 828 865 / 0508 TAUTOKO (24/7). This is a service for people who may be thinking about suicide, or those who are concerned about family or friends.
Depression Helpline: 0800 111 757 (24/7) or text 4202
Samaritans: 0800 726 666 (24/7)
Rural Support Trust Helpline: 0800 787 254
Rainbow Youth: 09 376 4155
OUTLine: 0800 688 5463 (6pm-9pm)

Patient Health Transport & Shuttles Directory

If you do not have a car, find parking too expensive, or struggle with transport, these community services are here to help you get to your six-monthly blood tests and medical appointments.

1. Nationwide: Hato Hone St John (Waka Ora Health Shuttles)

This is a volunteer-run, koha/donation-based door-to-door service. They will pick you up from home, take you to your blood test or clinic appointment, and drop you back home. Many vans are wheelchair and mobility-aid accessible.

How to Book: Call 0800 WAKA ORA (0800 9252 672) or 0800 ST JOHN (0800 785 646) - Phone lines are open Monday to Friday, 8:30am to 3pm. Closed on public holidays.
Email: wakaora@stjohn.org.nz 
Notice Required: At least 24–48 hours before your appointment.

Key Coverage Areas:

  • Northland: Whangārei, Bay of Islands, Kaikohe, Russell, North Hokianga (Call 0800 401 131)

  • Auckland: West Auckland, South Auckland, East Auckland

  • Waikato / Coromandel: Hamilton, Cambridge, Tokoroa, Otorohanga, Thames, Waihi, Paeroa, Whangamatā

  • Bay of Plenty & Lakes: Tauranga, Te Puke, Whakatāne, Ōpōtiki, Rotorua, Taupō (Call 0800 824 325)

  • Hawke's Bay: Napier, Hastings, Wairoa, Waipukurau

  • Taranaki & Whanganui: Hawera, New Plymouth, Whanganui, Marton, Waimarino (Call 0800 266 547)

  • Manawatu & Wellington: Palmerston North, Feilding, Dannevirke, Otaki, Wairarapa

  • South Island: Nelson, Marlborough, Motueka, Christchurch, Ashburton, Central Otago, Dunedin, Southland, Invercargill (Call 0800 103 046)

2. Regional Community & Hospital Shuttles

If St John does not service your specific area, localised trust vans run scheduled routes connecting smaller towns to major medical and laboratory centres.

  • Waikato | Te Aroha Community Health Shuttle | To Hamilton & Thames clinics | (07) 884 9479 |

  • Waikato | Morrinsville Community House Van | To Waikato Hospital & local labs | (07) 889 5355 |

  • Waikato | North Waikato Transport Trust | Local community health transport | Look up Waka Tautoko |

  • Horowhenua | Horowhenua Health Shuttle | Levin/Horowhenua to Palmerston North | (06) 366 0920 |

  • Kapiti/Horowhenua | Foxton Beach Community Van | To Levin, Palmerston North & Wellington | 027 787 8387 |

  • Carterton, Masterton and South Wairarapa to the Wellington area list and the phone number is 0800 589 630

  • Palmerston North/Manawatu is 0800 323 565

    Tips When Booking:

  1. Book early: Community shuttles are incredibly popular and run by volunteers. Try to book your transport the moment you receive your six-monthly reminder letter or book your lab appointment.

  2. Have details ready: When you call, have the exact address of the local southern cross/Pathlab/Aoraki lab or hospital clinic, along with your appointment time.

  3. Ask about mobility: If you use a walker or wheelchair, mention this during the phone call so they can allocate a van with a hoist or ramp.

🔗 Where to look for more localised options:

If you are in a very remote pocket of the country, check Healthpoint.co.nz under the "Community Health and Social Services -> Transport" tab for specific region, or contact local Citizens Advice Bureau (CAB), as they keep hyper-local lists of volunteer drivers.

Travel Assistance

The National Travel Assistance Scheme helps people who need to travel long distances or travel frequently. You need to be referred by your specialist to see another specialist. The specialists must both be part of a government-funded health and disability service.

The Scheme is administered by Health New Zealand | Te Whatu Ora who uses the NTA policy to guide their decision-making according to the eligibility criteria.

You may be eligible for the National Travel Assistance Scheme if all of these apply.

  • You have been referred to the specialist you are going to see by another specialist (not a GP).

  • Both specialists are publicly funded. This means they are part of a government-funded health and disability service — for example, a renal dialysis centre or a specialist disability service.

Total Mobility Scheme (Half-Price Taxis)

If you have long-term mobility issues or illnesses that make using standard public transport impossible, this regional council scheme provides a 50% discount on taxi fares (up to a specific regional cap). You'll require an assessment through an approved agency (like Age Concern or CCS Disability Action) to get the Total Mobility photo ID card.

 

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